Recently, I have gotten to practice speaking English with fellow Japanese English learners in Spaces on Twitter.
*A Space is a group chat function that Twitter launched this year. Any Twitter users can join Spaces, even if you don’t follow the host.
As an online English teacher, I can speak about anything one way or another in English. However, I feel frustrated and even embarrassed when I cannot put my ideas into words in a way that I’m supposed to be able to do.
There have been many times when I get mad at myself and think “I could do much better than this if only I felt better!”
I have always felt fuzzy brained, fatigued, and had headaches, stomachaches, chills and a sleep disorder. There has never been a single day when my mind or body is refreshed since the day I came down with ME, 26 years ago
My health problems severely limit my performance in everything, and it is extremely stressful.
As a matter of fact, I have never been able to take an English proficiency test such as the Eiken and the TOEIC test when I was feeling well.
I still clearly remember the frustration that I felt when I took the Eiken Grade pre-1 in 2009. For two weeks prior to the test, I had an upset stomach and had to live on rice porridge. Even on the test day, I was feeling nauseous, and I failed the test by two points.
I also had a day when I had a horrible stomachache during a test, and it took me 20 minutes to alleviate the pain by taking deep breaths and stroking my stomach.
No matter how unrealistic it may sound, it is completely normal for me to take tests in such a horrible physical state.
I used to think when I looked at my disappointing test results, “I could’ve done much better if only I had been feeling well.”
However, I have come to see things in a different way now.
It’s normal to feel unwell
In the summer, I was asked to join a bilingual podcast, where the emcees and a guest speak both in English and Japanese, and I accepted that offer immediately.
That’s when I started wondering what I should do to get well enough to speak as fluently as I could.
I was thinking out loud when my mom said to me “You can just show who you are no matter how bad you’re feeling because that’s your usual self.”
Her comment made me feel better, especially because it was from a woman who has been suffering from a chronic illness for over 40 years.
If I joined a podcast or filmed a YouTube video only when I’m feeling 100% well, there would only be a day in a year (at most).
However, there would be a lot more days if tried when I can give it half as much as what I’ve got.
Furthermore, if I had a day when I could bring out 80% of my full capacity, I would feel lucky, and getting 100% out of me would make me feel super lucky and happy.
I always have headaches and feel unwell and awfully fatigued. I’m aware that that is my life, so I have come to call it a success if only I manage to do the best that I can.
The realization was an eye opener for me.
Just the other day, I carried out a practice exam for the TOEIC test, with a count-down timer.
It is only natural that you want to try such a test when you feel well to get as high a score as possible, but I did it when I was feeling as unwell as usual.
An hour and a half into the two-hour test, I started to feel sick, but I grinned because it meant that I was doing the practice under the same conditions as an actual test.
Just as expected, I slurred a lot and wasn’t able to speak half as much as I wanted to, but I got to meet awesome people, and that made it well worth the try. (Now I am getting ready for my next Space.)
In addition, I have been filming YouTube videos to share useful expressions that I learned from native English speakers this year. Although I did not really like speaking in English when I was feeling unwell, now I’m totally okay with it because it is me.
“I should be proud as long as I gave it my very best at that moment.”
Interestingly, ever since I have come to think this way, I have become able to try new things more than I did before though my physical state is the same as before.
I’ve come to terms with the fact that my illness is part of me
Certainly, I’m not saying that you have to be content with yourself without trying or studying.
In my case, I have been through a lot such as having to give up on taking an Eiken interview test and letting a TESOL course take me four years and two months to finish due to my ME flaring up. (The majority of people finish the course within a year or less.)
▼I wrote about how I struggled with the Eiken interview test in 2019
I have come to terms with the fact that my illness is part of me, and the acceptance helped me think that it is okay to let it affect my ability and performance as long as I try hard.
And from now…
Recently, I have been really excited for the future because I have a feeling that I can do more and better despite there being no sign of recovery from ME.
My current goal is to get a score of 950 or higher on the TOEIC test this spring (in 2022). I need to find efficient ways to study English with my extremely limited energy and time, but I will have fun doing so.
I’ll keep trying my best every single day to achieve my goals.
Related posts
The original version of this article>>「体調の悪いいつもの姿を見せればいい」という開き直りで挑戦が楽しくなった話
Thoughts I had in the spring>>Different Perspective Brings New Discovery; a Walk for Sakura Photos
List of things that I realized >>Category:Realization & Discovery
My illness, ME/CFS is explained >>What is Myalgic Encephalomyelitis (ME/CFS)?